Help end medical misogyny. Sign our petition.

Help end medical misogyny.
Sign our petition.

Sign the petition

Please or to access all these features

Chat

Join the discussion and chat with other Mumsnetters about everyday life, relationships and parenting.

Why are ADHD benefits in the firing line?

388 replies

FunStork · Yesterday 22:36

I've been seeing this a lot recently.

Feels like the media is very much against ADHD benefits claims.

Why is that the one that seems to be getting all the focus?

Another one from BBC Verify tonight:

https://www.bbc.co.uk/news/articles/c24ym9yd8p6o

Is this an orchestrated campaign?

The head and shoulders of Andy Burnham, wearing glasses, a white shirt and a blue blazer, on a blue Verify-style background, with Verify logo in the top left hand side corner.

How rise in ADHD benefits claims is adding to Andy Burnham's welfare challenge

More than 100,000 people with ADHD as their main condition receive Pip, latest figures show, an increase of 40% since Labour came to power.

https://www.bbc.co.uk/news/articles/c24ym9yd8p6o

OP posts:
Thread gallery
6
XenoBitch · Today 00:16

Gingerkittykat · Yesterday 23:11

A lot of people see ADHD as kids being naughty, and in adults as being a trendy diagnosis people get after watching too many TikTok videos.

I'm autistic and attend support groups for ND people and presentations vary from people who manage well with some difficulties to some people who are overwhelmed with their ADHD and have major struggles with it.

I attend similar groups too. We are all different. No one is the same. Some people work, and others do not.

Hayley1256 · Today 00:24

I think it's because having ADHD doesn't incur more costs to live. So, I understand people receiving PIP if they have a condition that limits working hours, means they can't work at all, can work but their condition means they incur extra costs like taxis, therapy, house renovations, other services/ items they may need to aid with there condition. But I really don't understand what extra costs a full time working adult has just because they have ADHD (other than medication). Same with kids, what extra costs are for a child with ADHD compared a child who doesn't have it.

I think the PIP situation needs looking as it seems that people that do need extra support to have a decent quality of life don't get it because funding and resources are too stretched

XenoBitch · Today 00:31

Hayley1256 · Today 00:24

I think it's because having ADHD doesn't incur more costs to live. So, I understand people receiving PIP if they have a condition that limits working hours, means they can't work at all, can work but their condition means they incur extra costs like taxis, therapy, house renovations, other services/ items they may need to aid with there condition. But I really don't understand what extra costs a full time working adult has just because they have ADHD (other than medication). Same with kids, what extra costs are for a child with ADHD compared a child who doesn't have it.

I think the PIP situation needs looking as it seems that people that do need extra support to have a decent quality of life don't get it because funding and resources are too stretched

No one on PIP has to tell anyone what extra costs they have to live.

Also, there is the ADHD tax. Look it up.

elliejjtiny · Today 01:20

KitTea3 · Yesterday 22:58

I don't know but I'm currently fucking sick and tired of the current media circus demonising it and attacking those of us with it (along with depression/anxiety).

I don't even currently claim pip (I used to, when they misdiagnosed me and medicated me for bipolar for 12+ years-yes that's how severe my anxiety and depression is-they legit though I had bipolar 🫠) and they talk about how "mild" ADHD doesn't deserve help...I scored 8/8 on inattentiveness and 9/12 for hyperactivity so I'd love to know wtf actually qualifies as "severe" 🤔🙄

You know how they have those goggles you can put on to simulate sight loss and blindness? I wish they'd invent some brain equivalent and let someone try and do their job with the shit I'm experiencing on a daily basis. And then let them come back to em and tell me how "it has no affect on their ability to work".

Id love to just "snap out of it" and get on with it, sadly if that was as simple as that is not have been having to live with severe depression (and ADHD) for the past 29 years of my almost 40 year life 😞 I'm sick of hearing about it and sick of seeing people's quite frankly incorrect, inconsiderate and insulting opinions on it.

Oh and yes I do actually work.

Unfortunately only part time. As that's all I can manage as multiple attempts to work more have left me off sick and suicidal and occupational health themselves recommended I can only realistically safely work part time.

I went on a course for understanding ND conditions where we had to do different activities to see what it felt like to have different ND conditions. I think the adhd one was having someone on one side of you reading a poem, someone on the other side of you reciting times tables and while that was going on you had to copy out a recipe for a sponge cake.

DreamingBe · Today 01:47

Hayley1256 · Today 00:24

I think it's because having ADHD doesn't incur more costs to live. So, I understand people receiving PIP if they have a condition that limits working hours, means they can't work at all, can work but their condition means they incur extra costs like taxis, therapy, house renovations, other services/ items they may need to aid with there condition. But I really don't understand what extra costs a full time working adult has just because they have ADHD (other than medication). Same with kids, what extra costs are for a child with ADHD compared a child who doesn't have it.

I think the PIP situation needs looking as it seems that people that do need extra support to have a decent quality of life don't get it because funding and resources are too stretched

Well, there are the clothes we need to wash ten times or bin because we forget to empty the machine or set an alarm then find again once it all smells mouldy (or is growing mould, ick), the food we end up binning due to inability to plan meals or manage shopping, or remembering to take the groceries we bought at lunchtime home from the work fridge on a Friday. There's the damage to the house our child caused by impulsively stuffing soap into the sink overflow and left the tap running until the room below was flooded, the constant school uniform buying because they chew holes in a new shirt the same day, the overdue library book fines, the door that needed replacing because they couldn't be persuaded not to swing on the handle out of an inability to wait for more than five seconds. The lost promotions at work because we're constantly late or forgetful or say the wrong things before thinking, the constant array of objects that we've misplaced or forget exist so buy again, the impulse purchase buying of hundreds of pounds worth of craft supplies only to lose interest and have an overwhelming urge to get into another craft a month later that feels more important in the moment than breathing. Needing to eventually hire other people to do the things you can't but feel you should be able to, the therapy books, the time off ill from depression because everyone else somehow manages these things, or off ill because impulsive behaviour gave you a harmful addiction or lack of executive function made it impossible to organise dentist appointments let alone remember to brush your teeth and now you need half your teeth root canalled or removed but you don't have a dentist because you forgot to book regular appointments and they discharged you as a patient. Or off unpaid, fired or forced to work part time because there is no childcare that will accept your child who is wildly uncontrollable without 1:1 care and school have sent them home again for stealing food and pushing past all the other children patiently queueing. The free meals and childcare during holidays that your child can't access despite being poor enough, because the holiday clubs say they're inclusive to disabled children but aren't. The time someone stole your car because you forgot to close an external door. The far higher likelihood of divorce, unplanned pregnancy and various other adverse life events.

Gosh, I wish all of that cost nothing.

dizzydizzydizzy · Today 05:06

Piglet89 · Yesterday 23:33

@dizzydizzydizzyI think “everyone” is a significant exaggeration. I’m 45, have a kid with ADHD, might have it myself, know several women my vintage who’ve been diagnosed.

I don’t know many of my peers who dismiss it out of hand, at all.

Yes fair enough “everyone”’ is incorrect. I should have written “many” or “most”. I also have ADHD and am fed up of hearing claims that it is being overdiagnosed, people are pretending they have it to get accommodative at work they don’t need, get PIP etc etc.

babababababababada · Today 05:29

The vast majority of PIP claimants are now too disabled to work. It didn't used to be like that when it was introduced from what I understand but from what I've read on disability support forums it sounds like there's been a conscious drive from the government over the years to block people who are well enough/able enough to work from getting PIP. Some still do work and get it of course but it's more unusual (and I suspect it's people with undeniable physical disabilities who would make the DWP look bad if their photograph was to appear in the press). One woman who posted in a disability benefits forum said that one of the assessors actually commented to the other during a tribunal that she didn't understand how she, the claimant, was still receiving PIP while managing to hold down a full time job (I think she actually had MS rather than ADHD but I could be wrong - can't remember the details). She lost it at that review. It is being rationed. Anyone getting PIP for "only" ADHD has it severely but I suspect the majority have multiple conditions. When I did my application I didn't have to list a main condition and I have no idea what they decided my main condition was. I do have ADHD though (as well as a dozen other things) and I do get PIP. I am too disabled to work.

Helpforahoarder · Today 05:54

My ex gets PIP for ADHD & Anxiety. This is relatively recently - 3/4 years. I personally think with the right support he could work and actually what has made his MH worse is not working. He hasn’t worked since Covid (was undiagnosed at that time)

he is currently battling because they have downgraded his PIP a level

HaveYouFedTheFish · Today 06:01

Crushed23 · Yesterday 22:46

I think people are more likely to know ADHD suffers who lead relatively normal lives, holding down jobs etc., so they assume all sufferers of ADHD are like that and question why they need PIP, when in reality there are degrees of ADHD (as I understand it). Whereas one is unlikely to know a paranoid schizophrenic who leads a relatively normal life.

I think it's this, plus the huge social media self diagnosed ADHD presence.

ADHD, like autism, is such a wide spectrum, and where people twenty years ago thought of people who couldn't live independently when they thought of both conditions, now they think of social media advocates or self diagnosed colleagues/ aquaintances.

It's quite controversial - diagnostic criteria change over time which is good for people understanding themselves but bad for people who genuinely need very significant support getting ever more limited funding.

BooneyBeautiful · Today 06:06

Watchoutfortheslowaraf · Yesterday 22:45

My friend did similar with her child and got dla- she was very pleased with it and has talked about it a lot. Does dla automatically convert to pip or is it reassessed?

When the child gets to the age of 16, they are invited to claim PIP, so are reassessed.

babababababababada · Today 06:10

Crushed23 · Yesterday 22:46

I think people are more likely to know ADHD suffers who lead relatively normal lives, holding down jobs etc., so they assume all sufferers of ADHD are like that and question why they need PIP, when in reality there are degrees of ADHD (as I understand it). Whereas one is unlikely to know a paranoid schizophrenic who leads a relatively normal life.

There's probably something to this. And yet these people are very unlikely to be getting PIP. Very few people disabled enough to get PIP are in full time work.

gotmyselfintoapickle · Today 06:11

Oncemorewithsome · Yesterday 22:54

PIP is very hard to get. I imagine that there are people with ADHD who get PIP but they probably have learning disabilities or other serious mental or physical health conditions as well. I seriously doubt there is any one with purely ADHD getting PIP.

I know someone who gets pip for adhd. He works so doesn’t claim anything related to his ability to work but he gets pip for it.

PonkyPonky · Today 06:17

Because it’s ridiculous in most cases to award a benefit just based on a diagnosis of ADHD. My friend gets £400 a month for her son’s ADHD. But the NHS pay for his medications, all appointments and diagnosis so what’s the money for? Friend was told to use to do things to use up son’s excess energy. There’s plenty of things you can do for free for that, the nation can’t afford it.

professionalcommentreader · Today 06:19

uptheposh · Yesterday 22:44

My son was recently diagnosed with ADHD. Friend said great now you can apply for DLA.
My reply was that he doesn’t need it and wouldn’t get it. She said just exaggerate as that’s what she did for both her kids.

Thats why.

Yep seen this also (I have later life diagnosis, always worked) seem people look up symptoms and be coached what to say to claim. Infuriating!

ToffeeCrabApple · Today 06:33

Its because over the last 25 years, the diagnostic criteria for adhd and autism have been broadened considerably to include a lot of people with milder traits who would not have met threshholds in the past. Those people would simply have been regarded as having quirky traits in the past & would have been expected to manage life without financial support /accomodations for being "disabled", so people can't see why its necessary.

At the same time that broadening of criteria has meant its become harder and harder to distinguish between a clear ND profile & traits many NT people also have, like time blindness, disorganisation, dislike of noises & smells, struggles to focus on boring tasks, procrastination.

This makes it harder for people to see these diagnoses as valid, because the definitions are so broad as to cover a huge proportion of what has previously been considered normal human variation/personality.

Corianda · Today 06:35

To pay for a private prescription, cleaning costs if someone is incontinent, to pay for counselling, taxi to work
What is it everyone needs it for?
It shouldn’t just be nice to have.

pinkyshirtya · Today 06:37

Honest answer here..... I think ADHD diagnoses have become a bit of a trend, and whilst debilitating for some, have become an excuse not to work for others.

I also believe ADHD is exacerbated by bad diets, lack of exercise and learned short attention spans due to phone usage and social media, and I resent these people not working whilst I have to.

Her53ff43 · Today 06:47

pinkyshirtya · Today 06:37

Honest answer here..... I think ADHD diagnoses have become a bit of a trend, and whilst debilitating for some, have become an excuse not to work for others.

I also believe ADHD is exacerbated by bad diets, lack of exercise and learned short attention spans due to phone usage and social media, and I resent these people not working whilst I have to.

Maybe educate yourself by reading the independent review on AdHD done by the NHS. It’s under diagnosed and clearly misunderstood in this country.

www.england.nhs.uk/long-read/report-of-the-independent-adhd-taskforce-part-1/

Cailin66 · Today 06:48

DreamingBe · Today 01:47

Well, there are the clothes we need to wash ten times or bin because we forget to empty the machine or set an alarm then find again once it all smells mouldy (or is growing mould, ick), the food we end up binning due to inability to plan meals or manage shopping, or remembering to take the groceries we bought at lunchtime home from the work fridge on a Friday. There's the damage to the house our child caused by impulsively stuffing soap into the sink overflow and left the tap running until the room below was flooded, the constant school uniform buying because they chew holes in a new shirt the same day, the overdue library book fines, the door that needed replacing because they couldn't be persuaded not to swing on the handle out of an inability to wait for more than five seconds. The lost promotions at work because we're constantly late or forgetful or say the wrong things before thinking, the constant array of objects that we've misplaced or forget exist so buy again, the impulse purchase buying of hundreds of pounds worth of craft supplies only to lose interest and have an overwhelming urge to get into another craft a month later that feels more important in the moment than breathing. Needing to eventually hire other people to do the things you can't but feel you should be able to, the therapy books, the time off ill from depression because everyone else somehow manages these things, or off ill because impulsive behaviour gave you a harmful addiction or lack of executive function made it impossible to organise dentist appointments let alone remember to brush your teeth and now you need half your teeth root canalled or removed but you don't have a dentist because you forgot to book regular appointments and they discharged you as a patient. Or off unpaid, fired or forced to work part time because there is no childcare that will accept your child who is wildly uncontrollable without 1:1 care and school have sent them home again for stealing food and pushing past all the other children patiently queueing. The free meals and childcare during holidays that your child can't access despite being poor enough, because the holiday clubs say they're inclusive to disabled children but aren't. The time someone stole your car because you forgot to close an external door. The far higher likelihood of divorce, unplanned pregnancy and various other adverse life events.

Gosh, I wish all of that cost nothing.

If you are spending hundreds of pounds on craft supplies, buying school uniform constantly and replacement groceries, how are you poor enough to need free meals during the holidays?

Her53ff43 · Today 06:53

gotmyselfintoapickle · Today 06:11

I know someone who gets pip for adhd. He works so doesn’t claim anything related to his ability to work but he gets pip for it.

He won’t get pip just for ADHD. It would be pretty much impossible to. The questions and point system would not qualify him.

Its a dreadfully researched article written by somebody who clearly has no knowledge of the PIP system- or ADHD.The wording is inflammatory- “main diagnosis is ADHD” although clearly points out there will be other diagnoses with it I’d love to know how they know it’s a “main” diagnosis”. It’s impossible to get data for that and it isn’t how the form is constructed. Conditions aren’t ranked.

marvelousmarmaladian · Today 06:54

I regularly have to do my washing 2 or 3 times, because I can't be arsed hanging it out.

Her53ff43 · Today 06:55

The National Autistic Society have already raised concerns about articles like this. I think journalists really need to be held more to account.

FunStork · Today 06:55

zigzagzigzagz · Yesterday 23:37

It probably doesn’t help that so many successful and often famous people talk about having ADHD in media interviews. You can understand if you hear that all the time then you would wonder why it’s also a reason not to work. You don’t tend to hear from the people who have it and it’s debilitated their life completely.

Totally agree with this.

Maybe the celebrities who talk about ADHD think they're helping, but they're really not. Many come across as self-obsessed.

I suspect they're doing for ADHD what Hollywood parents have done for trans kids.

Almost every day there's another celeb saying they have ADHD - this was on my feed this morning:

https://www.rte.ie/entertainment/2026/0707/1582241-dragons-den-star-sara-davies-diagnosed-with-adhd/

Dragons' Den star Sara Davies diagnosed with ADHD

Dragons' Den star Sara Davies has said she was diagnosed with Attention Deficit Hyperactivity Disorder (ADHD).

https://www.rte.ie/entertainment/2026/0707/1582241-dragons-den-star-sara-davies-diagnosed-with-adhd/

OP posts:
Ophy83 · Today 06:57

There is a very interesting book called The Age of Diagnosis by Suzanne O'Sullivan. You can listen to it on BBC sounds. You may not agree with everything but it is still very interesting.

One thing she raises is the issue of whether we over- diagnose certain conditions like autism, and what the impact of that is for those who suffer it to a debilitating degree. One effect could be depriving people who desperately need it of access to resources where waiting lists are lengthening. There is also a danger that the wider public start to think "I know Ben has autism and it isn't that bad, he can hold down a job, so Bill can't be as badly affected as he claims".

I wonder if that has happened with ADHD - high flying professionals are getting diagnosed which may give the impression that it isn't or shouldn't be a condition that stops people working, whereas for some people it definitely is.

Combine that with the fact that some people clearly do take advantage of the system and the suspicion that ADHD is easily faked in a way that physical illness can't be.

stillhiding1990 · Today 07:00

Floralibra · Yesterday 22:57

Because so many are claiming ADHD and taking the benefits. I’m not sure how ADHD stops people working and it shouldn’t be classed as a disability! There are other conditions not classed as disabilities but would sit more in that category than ADHD would! (And I’m currently under assessment myself and I would never claim)

You don’t understand how a deficit of attention could prevent someone from functioning in the work place? What kind of job do you do?