I’ll never really be sure what shifted things for her. We saw a dietitian and she got nutrition shakes - was hard to get these down her at first, but I think I underestimated how hard it was to improve her mental health whilst her cal intake and nutrition levels were so bad.
They helped a bit to improve this. I wonder if if it was some sort of burnout being AuDHD, so maybe she needed the time out in bed. I’m not sure. She used to be afraid of being downstairs as that was where she was sick, so she hid upstairs for months watching sitcoms.
Taking her away from home helped a lot, (stayed with family) as she had bad associations of being sick at home. Though that was problematic as she’d not want to come back ! But she’d eat more when away and get out more.
We paid for a psychiatrist and CBT therapist. She is now on Guancafine which does reduce her anxiety (though I think has made her quite irritable.)
As she began slightly improving, we then got tougher on her - totally banning all screen time, doing more exposure to things she was afraid of (associated with the illness.) we got a lot of push-back but it helped.
My husband actually gave up his business and I went part time so we are flat broke, but we were in crisis and had to work together. We also did some hypnotherapy for her. We borrowed a lot of money for all this!
If your daughter could face reading it, (mine couldn’t at her worst as didn’t want a reminder) “Guts” by Raina Telgemeir is a fantastic graphic novel about a girl in 5th grade who goes through the exact same thing (well not as extreme as my DD but it’s very similar). My daughter adores her books now and it was great for her to know someone else went through similar.
Its impossible to feel hope when they are lost in the anxiety, but she will get through this - I spoke to a mum whose daughter was the same and she’s now training in midwifery. I really hope you don’t have to wait too long and find some good support and help. X